CHARLESTON, WV – AUGUST 21, 2023 – National Grief Awareness Day is dedicated to discussing the myriad of ways people cope with loss. It is very common for caregivers and those living with Alzheimer’s or another dementia to experience the stages of grief, so it’s crucial to acknowledge these feelings and seek support.
Stages and Experiences of Grief
Dr. Elisabeth Kübler-Ross identified five stages of grief: denial, anger, bargaining, depression and acceptance. The Alzheimer’s Association explains how these stages can manifest in a caregiver or loved one living with the disease.
- You might deny that you or a loved one has Alzheimer’s or other dementia, or refuse to seek or believe a diagnosis. Ignoring the onset or worsening of symptoms is another form of denial.
- Some people feel frustrated and angry that they have the disease and aren’t able to do everything they did before. Caregivers can experience resentment or feelings of abandonment when their lives are impacted by Alzheimer’s.
- For caregivers of people in later stages of dementia, bargaining may involve the hope that your loved ones’ struggle will end. This can lead to feelings of guilt that you didn’t do enough or that you miss your life before you became a caregiver.
- Depression and sadness are common. You may mourn someone who has passed away or the life you had before dementia. Sadness can look different for everyone. Some people withhold feelings, shut down, or withdraw from activities. Others may be more open with emotions and ask for help. Both are normal responses.
- Acceptance can take time. It involves understanding your emotions and how grief is affecting you, while learning to live with the good and bad days. Finding humor or moments of joy in difficult times can also be considered acceptance.
Moving Through Grief
Grief is normal and necessary. Individuals might not experience all of the stages of grief, and they often feel different for everyone.
For caregivers, research suggests that becoming educated about dementia, having support, and organizing care plans can make grief easier. If someone is overwhelmed by their feelings, help them find a healthy outlet. This can involve talking to a healthcare professional, keeping a journal, or making time for enjoyable activities.
Seek out people who understand and can empathize, such as a support group. The Alzheimer’s Association hosts educational programs and caregiver support groups at various locations, days and times across the state. Visit alz.org/crf and enter your zip code to find programs near you.
Those concerned about themselves or a loved one can contact the Alzheimer’s Association 24/7 Helpline to schedule a care consultation and be connected to local resources, guidance and support. To reach the Helpline, call 800.272.3900.
